Many thanks your are really helpful for sharing this link.
Just wondering if Rusfentide is a form of chemoteraphy🤔
So glad to have had reduction in Hydrea, although I feel exhausted at times & my hair is still falling out in strands at a time.
Just a bit of interesting info!! On 18th March this year, I had a bruised muscle on r/h side. I was prescribed a very strong painkiller for 6 weeks, dreadful side effects from it so much so my stomach could only take water or tea. Had to put Hydrea aside + all meds with the exception of warfarin, for a few weeks. Had just started back on hydrea when my Haematology Clinic appointment was due. Lo & behold all my blood levels were within the normal range! Dr didn't renew my prescription on that account. 4 weeks later my next appointment arose, again blood levels ok, so roughly 2 months without any med or blood letting. 3rd visit Platelets were elevated, back on hydrea again 3days per week. During the off med period, my energy had improved tremendously, my hair ceased to fall out! But now back to square one even on 3 Hydrea in the week. I got a temporary reprieve from meds so perhaps might give other PV positive ppl a bit of a lift, a little miracle took place!