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Replies to "Hi and thanks for your reply. I was also prescribed doxycycline, along with a low dose..."
I have both LPP and FFA. I believe the former was triggered by Eliquis, which I no longer take, and the latter by lack of thyroid meds and stress. But I am stuck with both and no one seems to be able to help.
How did you find a support group? Dr. Donovan seems to be the most informed. I went to the doctor at Duke and got a laundry list. Has anyone tried the steroid injections in the scalp? I am trying to figure out why the dermatologist did not recommend this. I took Dutasteride and had some bad side effects and the breakouts increased.
Right now, I take black currant oil, Biotin and use Plated, the new exosome treatment from Mayo. Also I am trying rosemary oil in my shampoo.
Good luck!
Thank you for your reply and for the resources. My dermatologist and functional doctor have told me that none of the drugs that my dermatologist recommended are even mildly safe because they can affect my eyesight, namely causing retinitis. The dermatologist wants me to go to a retina opthamologist for a baseline retina exam if I decide to go on plaquenil. I did read on the CARF website that LPP is linked to hypothyroidism. I've been on thyroid meds for years but results from last weeks blood draw shows that my thyroid, especially my thyroid antibodies, are out of range. I'm seeing my functional doc on Wednesday so maybe he will have some treatment advice. Thanks again.