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Long COVID and gluten sensitivity

Post-COVID Recovery & COVID-19 | Last Active: Jul 1 12:26pm | Replies (55)

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@kayabbott

That is scary. Not being able to eat what peers are is also emotionally isolating. If you haven't tried this, you could check with a nutritionist about an elimination diet to see if he is sensitive to any other foods. I was likely gluten intolerant for decades before it morphed into celiac, after I caught H1N1 flu 14 years ago. My pre-celiac symptoms were mostly bloating, rashes, reflux, fatigue, and neurologic problems . As with celiac, one needs to be gluten free, and gluten is hidden in so many things. If you have not, you might try things that are labeled gluten free for awhile, to see if he is getting cross contamination. I got a new toaster and cutting board after celiac; a small crumb of bread can cause an autoimmune reaction. The National Celiac Assoc site has info on gluten free foods, places to eat, and such for celiac and gluten intolerant people. The findmeglutenfree app also has places to eat. About 30-40% of people have the HLA-DQ2 and/or DQ8 gene, and in ~2% of them it triggers celiac, the majority of whom are undiagnosed.

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Replies to "That is scary. Not being able to eat what peers are is also emotionally isolating. If..."

Thank you so much for sharing. We have been doing gluten free as much as we can and he is significantly better. This weekend we were away for my daughters soccer tournament so are in restaurants and even though we avoided the easy stuff like bread etc I believe he had gluten somewhere significant and he crashed.

He also seems to get wheezing and dry cough in addition to fatigue when he has a lot of gluten. We have seen a naturopath and did some allergy sensitivity testing. He is also milk intolerant and intolerant to egg whites but gluten / wheat was more severe. M

I will keep working on this. Just happy to see that I am not imagining things..... and the link to Covid infection triggering all this could be true. Sometimes I feel we are imagining things.....😢