HOCM is so weird! I hear what you are saying...how strange you can run up stairs and be fine but at night or rest, BAM! I had good days when I thought I was fine, and then other days I felt like I was going to pass out, or had chest pain just bending over to put my shoes on.
I was on probably five different beta/calcium channel blockers before and after surgery. They didn't like me, and I didn't like them and last year, working through the patient portal at Mayo, Dr. Ommen told me to just stop. So I did, and I am fine now. I worried about going off them, because after surgery my heart rate was always high. Resting at 90. But I think the healing part, which takes awhile, finally settled things down to where I could go off them. I still tend to run high, and the heart rate goes up pretty fast...but I'll take that and be fine as long as I don't have to take meds. I'm on a baby aspirin for life. That's a nothing burger to me.
I remember before surgery my heart would do so wild stuff at night. The bed shook because it was working so hard. I could feel the pauses (which scares you) the crazy rhythm.
That was a lot of words (I'm known for using a lot of words) but for me...the surgery made all that go away. No more chest pain. No more meds. My EF resting was around 82? I can't remember. But during stress, like what they did in surgery, it was 253. Dr. Dearani said I had a severe case of HOCM...which was so oddly comforting to know, because I didn't look that bad on paper. I knew how I felt though. I was afraid I was going to die sometimes. I was very athletic and active prior to HOCM robbing me of my life. I didn't want to die in my sleep or out running the trails.
I can't speak to the effects of Camzyos, so hopefully one of our amazing HCM/Camzyos people can answer? Do you know how long before you will be approved? Is your doctor familiar with HOCM and Camzyos? How is your overall health besides the HCOM?