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DiscussionSmall Fiber Neuropathy and Epstein-Barr Virus
Neuropathy | Last Active: Nov 10 8:34pm | Replies (26)Comment receiving replies
Replies to "I had EBV (Mono) at 19 also. I am 61 now. I truly believe EBV was/is..."
Hi @mamalernan, Welcome to Connect. When it comes to autoimmune conditions it does seem like one of those when it rains, it pours moments in life. I so agree that it's important to have doctors that listen to you and work with you to find a treatment that helps. I've found it's equally as important for us as patients to be our own advocates and better communicate our questions and concerns with our doctors. One thing that has helped me is to write down questions that I want to discuss with the doctor before the appointment and take them with me so I don't forget in the heat of the moment.
Have you found anything that helps you communicate better with your doctors?