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Small Fiber Neuropathy and Epstein-Barr Virus

Neuropathy | Last Active: Nov 10 8:34pm | Replies (26)

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@mamalernan

I had EBV (Mono) at 19 also. I am 61 now. I truly believe EBV was/is a contributing factor to my SFN. it really went into overdrive about a year after I had Shingles. I was originally diagnosed with Fibromyalgia In 2004 and I now think it was actually SFN. Good luck with your Doctors. I pray they actually listen to you.

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Replies to "I had EBV (Mono) at 19 also. I am 61 now. I truly believe EBV was/is..."

Hi @mamalernan, Welcome to Connect. When it comes to autoimmune conditions it does seem like one of those when it rains, it pours moments in life. I so agree that it's important to have doctors that listen to you and work with you to find a treatment that helps. I've found it's equally as important for us as patients to be our own advocates and better communicate our questions and concerns with our doctors. One thing that has helped me is to write down questions that I want to discuss with the doctor before the appointment and take them with me so I don't forget in the heat of the moment.

Have you found anything that helps you communicate better with your doctors?