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Possible Al Amylodiois

Blood Cancers & Disorders | Last Active: Jul 23, 2023 | Replies (5)

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@casey1329

My husband, age 71 has PVC's (1,200) and low pulse rate (45) . The cardiologist said that the PVC's were not that bad and the low pulse rate is because my husband exercises a lot but I'm not so sure that the doctor is right. He also had a slightly elevated Kappa Free Light & Lambda Light Chains as well as very elevated CRP & Sed Rates. My husband started to watch his weight, stopped drinking and started to walk and get his 10,000 paces in a day. The CRP & Sed rates are now normal but still has PVC's & low pulse, haven't tested the light chains. So here we are, I share your concerns.

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Replies to "My husband, age 71 has PVC's (1,200) and low pulse rate (45) . The cardiologist said..."

@casey1329 My husband who is 80 yrs old has been suffering for months with the same health issues. His PVC’s have come down since he has been taking Diltiazem 120mg but still gets them. He went to ER several times with shortness of breath, dizziness and weakness before starting this med 2 months ago. Then after his last visit to ER and visiting specialists (neurologist, ENT, urologists, infectious disease specialists, pulmonologists) we decided to go to Mayo Clinic in Jacksonville FL for 2nd opinion. He has his cardiologists there when we were living in FL. The cardiologist found out he had the Kappa/Lambda proteins very high as well as finding he has Cardiac Amyloidosis. His hematologist ordered 2 biopsies to confirm Amyloidosis: the results confirmed Amyloidosis in addition to the finding of plasma cells acting up resulting in the increase of these proteins which are causing his Amyloidosis. He started with Vyndamax for his Amyloidosis and this coming Tuesday he will start with low dose chemotherapy to stop the progression of the proliferation of these plasma cells. I have to confess that we were not expecting for him to start with chemo treatment but the hematologist told him that if he decided not to take the chemo the disease would be fatal. My husband had cancer in 2017 with Proton therapy radiation in Jacksonville FL too but never had chemo. We just pray this chemo treatment with this new drug “daratumumab” stops this condition. Hope you find solutions for your husband.