My Experience on Evenity for Treating Osteoporosis

I will be having a DEXA scan next week to see if there were any improvements after 5 doses of Evenity. I will post my results. Depending on the results I will decide what my next step will be. Unfortunately I do not have a MD I have trust in so the decision is mine alone. As always I am trying to think positive thoughts and continue to take my supplements and stay active.

@bern06 I am puzzled by the differences in doctor recommendations since I would have assumed they are based on studies. My docs will not use Prolia (top docs at major hospital). How are you going to get off Prolia eventually? I am going to do Reclast to "lock in" gains from Tymlos and then hope to take a break. Evenity is so new that little seems to be known about follow-up. The manufacturer of Evenity also makes Prolia and recommends that sequence on the website. I am curious what your doc said about future treatments.

For Evenity users, how often are they re-checking your T scores?

Less than a week after my first Evenity injection I am experiencing cold symptoms...runny nose, sneezing, sore throat for one day, feeling congested and with low energy. I am resting and taking anti histamine medication. I don't usually get colds nor allergy symptoms at this time of year. Anyone experienced these symptoms? I looked up Evenity and they did mention runny nose, sore threat could be a side effect.

I too am amazed and horrified that doctors recommend Prolia seemingly without a thought of how do you get off of it. Not everyone gets multiple spinal fractures when stopping Prolia but the risk of those fractures is significant. And while it is perhaps not clearly defined how many people will get those multiple fractures it is clear that there is a significant risk for a very bad outcome. Your life could just get chaotic for whatever reason and you miss your shot and then a few months later you start fracturing!
People confuse this issue by thinking that Prolia is just like the anabolics in that you lose bone quickly after stopping it. But it's not the same. With the anabolics you do lose bone but you don't start getting multiple spinal fractures. In fact there's a study showing that your fracture risk stays improved for up to 1.5 years after stopping Forteo even though you are losing the bone density you gained while on it.

I'm about ten days after my first dose of Evenity, and I also have a big head cold... sneezing, runny nose. Taking cold meds and carrying on, but unusual, too, for me at this time of year. Evenity brochure does mention colds, though I haven't seen many people talk about getting them.

I appreciate your reply@ottawabones.
Will work on keeping up my spirits and I hope you will too!

I hope you don't have any other symptoms. After my first dose I also had cold symptoms, headache, fatigue, and some eyelid swelling. My MD told me to take a Benadryl. My side effects were manageable until after my 4th injections when I started having Palpitations. I truly was going to stick with this medication but after the 5th dose they got worse. I am going to be seeing a Cardiologist if they don't resolve, I am worried, I have never had any heart issues, I am a healthy 62 year old, very active. Yes, try and think positive thoughts, if you can meditate, keep active and read " Great Bones" the book by R Keith McCormick. It has so much information about OP and he explains things in terms you can understand. This site is so helpful with all the support we receive from each other.

If you do not take Prolia does that mean you lose the gains won with Evenity?
Thank you for sharing; I am concerned with side effects of this med.

@lashu you can transition to Reclast after Evenity, and with monitoring we may be able to take a break after one or two infusions. In our 80's Prolia might be okay, depending on our life span- according to my doc.