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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)
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@migunner

started sandblasting and painting jop at 13, used to wash the paint off my hands and face with laquer thinner, five years of that, then exposure to benzene in fuel and constant over the years safety kleen solvents, mechanic 22 years and shop owner 15, mgus at 66, your hemo doc is wrong, damage to dna at bone marrow after accumulated time/concentrate, my stepfather used roundup without ppe and I warned him, he had multiple myeloma, but I find a 2 hour bike ride hike push bike up trails and ride back keeps them away for 2 days, 3rd day they are back, D.mg

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Replies to "started sandblasting and painting jop at 13, used to wash the paint off my hands and..."
mgrspixi25 | @mguspixi25 | Jul 21, 2023

Sorry to hear such toxic exposures occurred.
Yes I think there’s some kind of positive outcome from physical activity; when I was still physically functional enough, physical activity would make improvements.
When I initially noticed symptoms (early 30’s) I tried to stay as active as possible to try to stave off illness. I was diagnosed (MGUS, bone marrow biopsy) at 48, however it was a good 4-5 years before that when I started having nerve problems (beyond what I had from a traffic incident at 28), and that’s when I think MGUS was becoming an issue symptomatically.
As a child I was standing in pans of petrol cleaning engine parts for rebuilds for hours each day after school. No shoes, neither gloves. Felt crook as afterwards, like I may have had less exposure if I drank petrol instead hehe.

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