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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)
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@mguspixi25

Sorry to hear Wendy. Sounds hard. The way I tell the difference between spine issues causing weakness/nerve symptoms in my legs and the issue of PN is how symptoms are in my thighs and pelvis/hips - when this is high, and while laying down I have difficulty moving my legs (they’re heavier/shooting pain from spine to thighs, etc) then I know it’s spinal. When I have stabbing into my hells when I place my foot on the floor, I know that’s spine. Numbness in feet/lower legs, loss of distal proprioception (knowing where my foot is in space and having it move accordingly comes from the PN (it took me years to learn the difference). I have failed prior back surgery for chronic compression from multiple disc injuries when I was 28 (amongst other damage). I have a knee replacement on the left (I got it when 47 due to bone on bone and 5 prior surgeries to help keep it working eventually failing), and I’ve damaged the prosthesis in a fall (I’m waiting on another replacement as this is now very loose and contributes to more falls). I know when it’s the knee when my leg buckled and collapses - these falls are kind of ‘building implosion’ type falls; straight down because the ‘foundation’ has collapsed. Hopefully there’s something helpful there?

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Replies to "Sorry to hear Wendy. Sounds hard. The way I tell the difference between spine issues causing..."
wendy50 | @wendy50 | Jul 21, 2023

Thank you for answering! I’m brand new to this website, so I’m just learning to use it. We have a lot in common- sorry for us!

In August of last year I went to the er with severe back pain. I learned a lot from the test results. I had three compression fractures in my lumbar region. I also had nerve compression at one level and they suggested surgery for L5-S1. There was severe compression on both sides. I had cementing of the three fractures. Then another one collapsed and I broke my collarbone in a fall. So, another cementing and a nerve block for my left leg. I started PT for my weakened back. My doctor discovered osteoporosis and I began monthly injections.
My back had become so weakened I was unable to swim( I used to swim a mile every day).
PT was designed to work hard so I could walk normally. Instead, my knees, which were bone on bone blew out. Intense pain in the right unlike before. ( I had managed my arthritic knees with injections every three months)
In May I had a total right knee replacement, at 73. I have been in PT now for two months. At ten weeks out I can walk without an aid. But I have a limp and can’t walk far. My left leg is weaker than the right! It’s like there is a short circuit from brain to left leg, in terms of stride. And from PT I know the quad muscles are weaker.

Add to that, I also have PN and can’t feel my left foot. It seems to be moving into my ankle. Is that possible?

I was born with MTHFR double allele mutation, have MGUS, and developed hemolytic anemia. I don’t know if any of these conditions contribute to my current challenge.

Any suggestions out there? All I want is to be able to walk my dog and travel again!!

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