1. < Breast Cancer

Anyone stopped treatment kadcyla for HER2+?

Posted by zeerj @zeerj, Jul 11, 2023

Had 10 of 14. Dr stopped it now due to lungs issues. Anyone had issues along in treatments and all is well? Did you go on pills for her2+?

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maggieb892 | @maggieb892 | Jul 12, 2023

I had 13/14 treatments when my liver enzyme counts were too high to safely continue. That was almost a year ago (Aug 21) So far so good.

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1 reply
zeerj | @zeerj | Jul 12, 2023
In reply to @maggieb892 "I had 13/14 treatments when my liver enzyme counts were too high to safely continue. That..." + (show)
@maggieb892

I had 13/14 treatments when my liver enzyme counts were too high to safely continue. That was almost a year ago (Aug 21) So far so good.

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Thank you! Can you share what follow ups you do and how often? Are you on any pills now?

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maggieb892 | @maggieb892 | Jul 12, 2023
In reply to @zeerj "Thank you! Can you share what follow ups you do and how often? Are you on..." + (show)
@zeerj

Thank you! Can you share what follow ups you do and how often? Are you on any pills now?

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year 1 and 2: every 3-6 months to visit with the doctor in each discipline; annual mamogran (I still have my right breast); and lab work at the discretion of my oncologist.
years 3-5 every 6 months to visit with oncologist, mammogram and labs at the discretion of the oncologist.
In addition to the above (what I think is typical follow-up), I've had my liver function tested and a CT scan in March. All clear!
I am not in any treatment at this time. My cancer was HER 2 only. So there is no medication for my doctor to recommend.

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boathouse | @boathouse | Jul 13, 2023
In reply to @maggieb892 "year 1 and 2: every 3-6 months to visit with the doctor in each discipline; annual..." + (show)
@maggieb892

year 1 and 2: every 3-6 months to visit with the doctor in each discipline; annual mamogran (I still have my right breast); and lab work at the discretion of my oncologist.
years 3-5 every 6 months to visit with oncologist, mammogram and labs at the discretion of the oncologist.
In addition to the above (what I think is typical follow-up), I've had my liver function tested and a CT scan in March. All clear!
I am not in any treatment at this time. My cancer was HER 2 only. So there is no medication for my doctor to recommend.

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Hello!
I had 11 of 14 and stopped due to internal infections. 12/22.
I finally had full reconstruction 5/8/23.
Healed fast and doing follow up every 3 months year 1-2 and 6 month year 3-5. I feel strong and my “new normal” is feeling fantastic and I am comfortable knowing I went 11/14 rounds.
No worries for me and I was HER2+ stage 3

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Jul 19, 2023

Hello @zeerj. How are you doing now? Any updates on treatment plans?

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zeerj | @zeerj | Jul 19, 2023
In reply to @auntieoakley "Hello @zeerj. How are you doing now? Any updates on treatment plans?" + (show)
@auntieoakley

Hello @zeerj. How are you doing now? Any updates on treatment plans?

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Hello @auntieoakley, feeling better. Taking medication for pneumonia and Valley fever. I meet with oncologist again to. August and will let me know if any pills I might be on. In the meantime, she believes Kadcyla is triggering my pneumonia (2nd time) thus stopped at #10.

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Jul 19, 2023

I am sorry to hear you haven’t been able to finish this cycle of treatments. I am hopeful that they will come up with a better plan.🤞🙏

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