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I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

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@michaelah

Don't fixate too much on this at this point. I went to neurologist for tingling toes. He found IgM at 820 with M-Spike at 0.8. He thought multiple myeloma, which made my worried to say the least. Went to oncologist 3 weeks later and more test showed Waldenstroms (MGUS possible stepped up), a much better alternative. Have gotten 12 infusions, three bone marrow biopsies (NO BIG DEAL i.e. not painful) and a ton of other tests. In conclusion - I'll be fine. So, I wish you the best and be patient.

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thanks