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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jul 26 9:18am | Replies (644)
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Profile picture for docoltun @docoltun

Just joining Mayo group. I've lived with ET for over two decades, given Anagrelide when it was new (I think...Agrylin) and that manages the platelet count. At 72, greater awareness of physical changes so...I'll keep watching the posts for new news!

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Replies to "Just joining Mayo group. I've lived with ET for over two decades, given Anagrelide when it..."
Lori, Volunteer Mentor | @loribmt | Jul 18, 2023

Welcome to Mayo Connect @docoltun. Thank you for sharing your experience with ET and what’s been working for you to keep your platelet level managed with Anagrelide. It’s always encouraging for others with essential thrombocythemia to hear a positive story from someone who’s had this blood condition for many years and doing well!
How long were your taking Hydroxyurea before it was switched to the Anagrelide? What were your side effects?

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