← Return to I am newly Diagnosed with MGUS.

Discussion

I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

Comment receiving replies
@leslie2121

I’m so sorry that happened but it got you an early diagnosis-somewhat similarly, I fractured 2 vertebrae (compression) while skiing & discovered osteoporosis and MGUS. I’m 64 & “healthy “.
I know exactly how you are feeling. Be patient and get to someone who specializes specifically in blood disorders, specifically MGUS and multiple myeloma etc. preferably in a research or teaching hospital with an active clinical practice in that.
It’s a complex disorder & new drugs & therapies are being developed at a rapid pace. Osteoporosis co-occurs with MGUS frequently and can be treated!
I was able to start treatment for that which helped me avoid any other fractures- but no
More snow skiing unfortunately.

Do what you need to do to get adequate sleep while you wait for the appointment. Learn a bit about MGUS but try not to google stuff. I did and most of what I found was discouraging and out of date!
As a retired RN I am my own worst enemy…

Jump to this post


Replies to "I’m so sorry that happened but it got you an early diagnosis-somewhat similarly, I fractured 2..."

I'm even worse, I'm a retired Oncology Certified Nurse and jump right to the worst conclusions. I really like your advice of going to a teaching hospital and looking seeing if I qualify for a study.
Thanks.