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Question about Nuplazid

Caregivers: Dementia | Last Active: Jul 17, 2024 | Replies (16)

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@raebaby

My husband who died with Parkinsons used it and it was helpful. You can look for an organization that gives the drug for a small co pay or free. Johnson and Johnson is one of them. Your neurologist might have the name of one.
one of his drugs was $900 a month WITH his insurance and he got one with a co pay for $100 a month through the organization.
I can hunt for it for you if you can't find one.

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Replies to "My husband who died with Parkinsons used it and it was helpful. You can look for..."

Thank you. We ultimately did get a grant which covers the copay for about a year & is renewable. He's now been on the 34mg dose of Nuplazid for almost 6 weeks. I notice more improvement than with the 10mg dose, which because of mis-communication issues btw the neurologist & the manufacturer, he had to miss an entire week & then went on the higher dosage. He still has occasional delusions about our homeof41+ years not being his or that he "just got here" & wonders "who runs this place/system/organization". He still sometimes does not remember his way around the house, again because he "just moved to this new house". And occasionally does not recognize me as his wife (Capgras). But these are not as constant as before the Nuplazid. We see the neurologist at the end of August & he will evaluate then. More importantly, his memory, executive functioning, visual & auditory comprehension, ability to get his thoughts out, etc. have deteriorated significantly in the last few months. He has also lost an additional 10 lbs. since early 2018, nearly 75 lbs. from 229 lbs. to 156 lbs. Yet his appetite is good. Both his primary & neurologist say it's due to the "disease", i.e. Lewy Body Dementia.