← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@mh75

I had a kidney transplant 6 months ago (01/23) and I noticed significant hair loss start around the 4 month mark post transplant. Now at 6 month post , the hair loss is pretty bad, I was told by transplant team to use Biotin to see if it helps. Around the same time (3-4 months post op) I had extremely low white cell counts and they put me on Neupogen injections ( 1 per week /for 4 weeks) u don’t t know if this had anything to do with hair loss but that’s when I started to notice it. I’m also on ENVARSUS XR (4mg ) , prednisone (5mg) and Mycophenolate (cellcept 100mg /2x day) honestly my body has not taken ENVARSUS / Tacro well at all , I’ve had really bad tremors and headaches everyday so that’s when they switched me to ENVARSUS XR which helped a little with tremors and for the headache they put me on Propranolol (10mg/ 2x day) that has helped with the headaches. I’m very grateful for my new kidney but it has been challenging at times with the meds I am on. I don’t feel my best yet but I’m hopeful I will eventually. Best of luck to everyone

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Replies to "I had a kidney transplant 6 months ago (01/23) and I noticed significant hair loss start..."

Good to hear from you! I am on Envarsus XR 0.75 times 3 tablets. I still have tremors but much less. Do we just resign ourselves to living with these shakes, being unable to type easily on the computer, trying to lessen tremors by taking anxiety meds? Dr, Peddi told me if Envarsus XR does not work for me he would help me find a med that would work. I am getting to that point maybe. Anyone else change off Envarsus XR? Side Effects of new med? I may be trading one bad experience for another. Ideas? Not an easy journey. And grateful for new kidney too. Blessings, BB