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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@hansj

Hello group!
I thought I'd send an update on my journey. I met with my doctor yesterday and we had a good discussion about the impact to my quality of life since dropping to 2.5mg. He has agreed to put me back on 5mg as this was clearly working well for me. I'm looking forward to feeling great again.

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Replies to "Hello group! I thought I'd send an update on my journey. I met with my doctor..."
kelliw | @kelliw | Jul 18, 2023

Yay Hans! This is such great news! Thank you for the update! I love how our doctors are able to listen to us and do what is best for us. I have my echo today. 🙂

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Debra, Volunteer Mentor | @karukgirl | Jul 19, 2023

I am so glad your doctor listened to you and you were able to make your needs known. This is not a one-size-fits-all deal, and being able to have input, be heard, and responded to in a positive way must feel like a big win @hansj!
This up and down, back and forth stuff must be frustrating for you! How long after going back on the 5mg will you see your doctor again?

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