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Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)Comment receiving replies
I was diagnosed with metatarsalalgia for extreme pain in the right foot I do have neuropathy from previous chemo on the left foot. In the summer I will have Vionics flip-flops. When I first had the pain a podiatrist recommended bionics and I also bought shoes I was wearing pads for the metatarsal ultra, but lately I don’t have to wear them I wore them almost 3 years! The pain on the right side was beyond excruciating. Also have that pain in my jaw bone. And I wonder if that’s related to MGUS?
Replies to "I was diagnosed with metatarsalalgia for extreme pain in the right foot I do have neuropathy..."
The first orthopedic guy I went to see diagnosed me with metatarsalgia. He prescribed that I wear a boot to extend my Achilles tendon and charged me $300 for the boot to alternate between my aching feet. I found the same boot… The exact same boot on Amazon for $29.99. Needless to say, I protested the charge and never went back to him. The boots did nothing to alleviate the pain anyway.
I then saw a podiatrist who was quite nice and put metatarsal pads in all of my existing 45 to 60 pairs of shoes. That did exactly nothing. I continued to have pain and numbness in both feet.
My PCP (in frustration) sent me to an orthopedic surgeon who said my feet were “quite good“ and I should go see another podiatrist.
I went to the only other podiatrist with whom I could get an appointment within the next six months. She prescribed metatarsal Pads that provided some stability for the toes so they were really sleeves that went over my front part of my foot. That has provided very little relief.
The one thing that I did get out of my appointment with the orthopedic surgeon was the recommendation for a brand of tennis shoes, which I have now noticed , so many of the medical professionals I have appointments with are wearing with their scrubs. They are the most comfortable shoes that I own, and have provided more relief than the orthopedic shoes that I purchase.
The biggest drawback for me with the foot pain is that it limits my activity. I no longer volunteer to take grandchildren to the zoo or go on any 6 mile marches with my friends and husband. It’s really changed my lifestyle. If there’s something that I really want to do. I just push through the pain and do it but it’s not high on my list of fun things to do.
So my only counsel would be to try these tennis shoes. They are very comfy. Not a cure, but help.
Patty
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Hello @paris2099, Welcome to Connect. I'm happy to see that you have already connected with @pmm and @momsys. There are many members with MGUS who have shared their experiences on Connect in different MGUS related discussions. The search function on Connect is great for helping you find other members with similar symptoms. Here's a list of the search results for MGUS using the search box at the top of the Connect page:
https://connect.mayoclinic.org/search/?search=MGUS.
You mentioned have pain in your jaw bone. Searching for MGUS +jaw pain found 6 posts that may be helpful - https://connect.mayoclinic.org/search/?search=MGUS+%2Bjaw+pain.