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Pending Sjogren's Diagnosis and Doctor Worries
Autoimmune Diseases | Last Active: Jul 21, 2023 | Replies (18)Comment receiving replies
ps Labels can sometimes be useful but mostly I view them as satisfying insurance codes. And if we have a diagnosis on record, we get treated better by docs 🙂 Unfortunately diagnosis is murky. It helps to understand that the criteria for autoimmune disorders are often geared to clinical studies, where they want pure, easily recognized cases, and those criteria often miss people whose diagnoses are murkier.
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Sorry for the late response - I appreciate the information you provided with me! My provider has since sent another email via the LPN stating that he doesn't yet recommend a biopsy (which seems to contradict the first email, but may be due to a misunderstanding), but it looks like I will be getting more labs soon.
And thank you for your reassurance. After reading through the experiences of others, it looks like this journey tends to be a super murky and sometimes confusing one. But I suppose I'm just thankful that we now know that there is something definitely going on - it's just a matter of figuring out what it is.