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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hello @mrsirishod, Welcome to Connect, I am not sure if your post was for me or for everyone since it wasn't done using the Reply button under a specific post. I posted my neuropathy journey in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.

Have you been diagnosed with neuropathy? Do you mind sharing any treatments you have found helpful?

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Replies to "Hello @mrsirishod, Welcome to Connect, I am not sure if your post was for me or..."

Unfortunately I being a Veteran get most of my care from the VA. Their treatment consist of taking my blood doing a urine test and keeping me on gabapentin and morphine as well as various muscle relaxers. I have tons of questions and get no answers from the VA yet I know that I can't be the only Veteran that suffers from this. Suffering is what we do because I have not yet found anything more painful then nerves dying in my body. I have never had something that affected my whole body the way this does. I ask has anyone else here had it affect their bowels? Mine was until the back surgery to get the pressure off the nerve. There has got to be something better then a spinal cord stimulator as yes it may help with the pain but does nothing to work on the disease so the day your nerves completely die the stimulator is nothing but a paper weight. I guess that's it for today. Depression from this sucks though