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Optic Neuritis

Eye Conditions | Last Active: Oct 26, 2023 | Replies (14)

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@rarelybees2889

Yes, I agree. I've had ON twice and don't have MS, but we know it is autoimmune in nature, although we are not sure what exactly it is. Mayo Clinic is the best, if you can get there.
A key treatment is three days of high dose IV steriod. This shortens potentially the amount of time with ON but is not a cure, as there is no cure...
I've had this high dose IV steriod done both times. Despite this, I still have some damage to one eye from a severe episode.
The sooner you get help from a neurologist and nuero-opthomologist, the better. This is a serious disease.
Also Mayo Clinic does have financial aid available, although I am not sure about being from Canada.
I went to an emergency room my first time and this was a bad plan, as they are not trained to look into the back of the eye, so they had no clue what to do and it wasn't at Mayo Clinic...
Mayo Clinic and other places can also do the MOG testing and a lot of tests as well as a MRI.. Also the symptoms can be different a second time. I knew the second time because I couldn't see the colored numbers and letters on the eye chart and the rim of the flashlight was missing when I checked.
This is a scary thing to have. Good luck you are not alone!!!

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Replies to "Yes, I agree. I've had ON twice and don't have MS, but we know it is..."

Thank you for your reply that is very helpful! I want her seen as soon as possible for sure. Is one campus better than another for
Ms and similar disorders?