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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)
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@jola13

Hi Guys
contd.... Didnt sleep last night due to the headache with started at 7p.m - Sunday.
Decided to run a bath at 4a,m then got dressed and lay on the bed. I managed to snooze and by 8a.m the pain had gone. I am exhausted and waiting for a call back from my specialist nurse.

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Replies to "Hi Guys contd.... Didnt sleep last night due to the headache with started at 7p.m -..."
Lori, Volunteer Mentor | @loribmt | Jul 17, 2023

Wow, what an awful night for you. Let’s hope you get some good direction from the specialist nurse today because you surely don’t want a repeat of that episode.

Have you had routine headaches since starting the HU? Make sure you jot down how often this occurs, if you can think of any triggers such as food, allergies, etc., besides the possible connection to the HU. Seeing that there are others in the forum who have had experience with the headaches it doesn’t seem uncommon for that to happen. However, there can be changes made to lessen the side effects.

This comment from @ontheverge today was timely…with their comment on headache with HU.
https://connect.mayoclinic.org/comment/897146/

Good luck today! I’ll be thinking of you and fingers crossed for no headache!

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