← Return to Strange symptoms rapidly worsening -back pain, vibrating legs and body

Discussion
Comment receiving replies
@seeker4answers

This sounds very similar to what I’m experiencing. I was convinced it MS, but neurologists, based on MRI, does not. 5 months of living in pain or extreme discomfort on good days. About to get a spinal tap and I want to be sure they test for everything possible, so I have been doing research. Years ago I got genital herpes and after the original outbreak, I would get an outbreak only very occasionally usually during extremely stressful times. I never took anti-viral, because it would typically be gone in 3-5 days and happen maybe once every couple years. I bring this up because I think this has something to do with the hell storm of neurological attacks happening to me right now. I’ve found articles too that support.
While I find a lot of information here, I’ve yet to find anyone with my symptoms, but what you describe comes close. Hope you find some answers soon.

Jump to this post


Replies to "This sounds very similar to what I’m experiencing. I was convinced it MS, but neurologists, based..."

Oh my god. Are you me lol? I have one of the exact same theories and even got prescribed antivirals b/c I had a borderline positive herpes titer. I've been having random flares of back pain in different parts of my back. When it first started it felt like a hot area or burning like inside of my spine in my lower back. I didn't really think much of it when it began the first couple of times but then it kept happening but now I regret it because of my current symptoms. I have noticed tiny little skin rashes in the area but they've never really looked like herpes lesions and were never painful. I wonder if I've been having herpes flares without major skin symptoms, if thats even possible. I never had a major outbreak that I can remember.

I am still semi convinced I have MS or CIDP or something but my MRIs didn't support a diagnosis of MS. I have an EMG scheduled for next Monday. It is terrifying because I KNOW something is majorly wrong and I'm so tired of waiting because it keeps getting worse and people around me are starting to notice because they can see me tremoring. I am getting annoyed and angry because I feel like at some point it should be considered serious enough to expedite these tests for a young person that could end up suffering from permanent neurologic sequelae. Every day that I have these symptoms and almost trip from a foot drop or feel like my legs are giving out from underneath me or feel like I'm losing my balance that I should go to the ER and beg for help but then I chicken out and don't go because I am embarrassed lol.