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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)
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@jola13

Hi Lori
Thanks I read the posts —just… the Pain, is still there .. just woke up .. have taken cocodamol 15mg/500mg. Will see if it kicks in. Will call my specialist nurse later this morning. I do suffer from migraines. This pain reminds me of the pain I had after my back op went wrong - after I had a dural leak with meningitis and a subarachnoid haemorrhage. In ICU for a month died 3 times. I have an aversion to bright light even now, so screen turned right down, When I have this sort of Pain I cant talk, move or touch my Head. I have a Valproate melt for emergency use but have to find out if I can use this now.

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Replies to "Hi Lori Thanks I read the posts —just… the Pain, is still there .. just woke..."
Lori, Volunteer Mentor | @loribmt | Jul 16, 2023

Definitely give your doctor a call because that headache sounds intense! Not sure if it’s the hydroxy or not but your doctor may suggest a day or so off just to see if your headaches subside. I think I mentioned it earlier that some patients on HU have had to reduce their dosages to hit a balance between a therapeutic dosage and side effects. I sure hope you get some relief soon! Sending you a hug…

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