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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)Comment receiving replies
I ❤️ NJ! I’m a native New Yorker living in HELL in Houston currently. Many friends and family all over NJ. This is the first summer in over 20 years I haven’t gone back home b/c of trying to get this PV under control. Thinking it is for now so we will head up east for the change of seasons in October. Also doing land every month to check platelets and other counts. After just being diagnosed, two months seems a long stretch for your next CBC so just pay attention to how you’re feeling incase you need to get checked sooner. Enjoy NJ!
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Can't ever take jersey out of any jersey girl 😉 or new york!
I could not live anywhere as hot as Texas, NJ is way too hot for me. Fall is a great time to visit, love the colors and it's football (we have 8 seats for Giants, family fun) and then ski season, my absolute fave ❤️ My goal is to be out West for 2-3 weeks and learn to keep the PV in check in higher elevations.
The PA felt she wanted to give me a break but of course I need to go in and get a CBC if I'm not feeling right. I had very specific crashing/stabbing type headaches before they brought my hemoglobin back down to a normal number. They'll be a telling sign I need to go in. I'll see my oncologist this Thurs and if he doesn't agree with waiting that long, I'll certainly go in sooner.
Try and stay cool, I saw something funny on IG where a woman in Texas baked a loaded of bread in her mailbox. Not sure it's really true but funny. Not so much for those dealing with the Temps.
Stay well, stay strong 💪🙏