Treatment advice for prostate cancer

Posted by kune @kune, Jun 27, 2023

Hi folks. I am 68 years old and was recently diagnosed with grade 3 prostate cancer. PSA is 6, Gleason score 6(3+4), and just got genomic(gps?) test result of 29. I am at the low end of the intermediate risk range of 25-60. My plan is to go on active surveillance and see where PSA is in six months. My doctor is ok with this. Does this strategy seem reasonably safe at this point? My other choice would be radiation. Thanks for your input.

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I was on active surveillance and figured if it started to grow we would take it out they take them out every day robotically no not a big deal my doctor told me I was good for 10 years I wouldn’t have to worry about it in three years later cancer left my prostate went into my ribs and sternum on my scapula it metastasized now with stage for now I don’t have a choice all I can do now is fight for my life which I am doing now it’s currently in all those places plus my back my shoulder and my spine now he found two little spots back in 2018 that’s when I decided to do active surveillance it was a time bomb waiting to go off and it went off and I’m paying for it I would either have my prostate taken out now or I would have them spots radiated Be sure to discuss with your doctor the odds of it leaving your prostate cause there’s no going back I’m 69 years old now I’m going back on chemotherapy I only have one drug left use the pluvictco no no what’s gonna happen One thing I learned from his journey is don’t be afraid to get a second or third opinion good luck

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@digger

I was on active surveillance and figured if it started to grow we would take it out they take them out every day robotically no not a big deal my doctor told me I was good for 10 years I wouldn’t have to worry about it in three years later cancer left my prostate went into my ribs and sternum on my scapula it metastasized now with stage for now I don’t have a choice all I can do now is fight for my life which I am doing now it’s currently in all those places plus my back my shoulder and my spine now he found two little spots back in 2018 that’s when I decided to do active surveillance it was a time bomb waiting to go off and it went off and I’m paying for it I would either have my prostate taken out now or I would have them spots radiated Be sure to discuss with your doctor the odds of it leaving your prostate cause there’s no going back I’m 69 years old now I’m going back on chemotherapy I only have one drug left use the pluvictco no no what’s gonna happen One thing I learned from his journey is don’t be afraid to get a second or third opinion good luck

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Sorry to hear that. Hope your luck changes and get well.

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I think that you have highlighted many important lessons.
1. AS must indeed be active, like every 3 months with frequent pet scans
2. There is no substitute for an excellent facility and care by a team of experienced medical experts with peer review
3. Too many people ( without sufficient medical knowledge and facts about your case) wish to comfort us and minimize our life threatening medical issue. You need to be tuned into which people you should listen to and who to ignore.
4. We have to fight for a longer life which has sufficient quality. If we are not getting the quality care that we deserve we have to be prepared to change to a new facility or at least get second quality opinions.
5. I am 76, Gleason 9, castration resistant, aggressive advanced PC and doing all that I can to keep going with as little pain as possible and hope to see my grandkids graduate. Unfortunately, much is out of my hands.
Good luck to you all

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@myersja

Hello, I am 8 weeks post RP surgery and am having the same burning issue with my penis. I did have a UTI but that has been resolved and have had multiple negative tests since. I also have pain that radiates into my penis when I sit on hard surfaces as well.
My Dr wanted me to get a CT scan to rule out any infections, ascites, fluid buildup, or lymphadenopathy. Results were all negative.
I also have a very active bladder and urine frequently. I believe I have a stricture in my urethra as my flow is weak and breaks into two streams. I go to have a Cystoscopy in 4 weeks for an official diagnosis. I am currently chalking the burning sensation to a potential stricture. I don't know what else it could be... Maybe I need more time to heal. I am 52 years old.

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Sounds to me like it's a pain from the catheter. My undercarriage was sore for a month afterward. Felt like the part between my anus and scrotum was hard like a stiff tube. Hang in there guy, will probably clear up but do what your doctor advises.

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@daveymc

Sounds to me like it's a pain from the catheter. My undercarriage was sore for a month afterward. Felt like the part between my anus and scrotum was hard like a stiff tube. Hang in there guy, will probably clear up but do what your doctor advises.

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Thank You! Fortunately, the pain the past week has begun to subside a bit. Keeping my fingers crossed. Still need to resolve weak stream issue, but feeling a little better. Appreciate your response.

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Thought so, now drink a lot of water today and when you have to really pee, stand up at a deep sink if you have one and let fly but don't force it. Don't try to knock the backwall down and after awhile it will be like aaahh

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@daveymc

Thought so, now drink a lot of water today and when you have to really pee, stand up at a deep sink if you have one and let fly but don't force it. Don't try to knock the backwall down and after awhile it will be like aaahh

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sit to pee and lean forward to fully empty the bladder

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@melcanada

sit to pee and lean forward to fully empty the bladder

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Have been doing this! It works. Than You

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@mmacaulay

Be sure to get a PSMA PET scan. Mine detected tiny hits in my chest, later confirmed by separate biopsy. Wouldn’t have been detected via other scan methods. Led to chemo and radiation with Lupron and Nubeqa.

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How did that go? How are you feeling now?

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I think that your plan, Kune, is good, however, I personally would elect RP if your cancer goes south as that reserves radiation as a later treatment. Doing radiation first probably will remove an important treatment of surgery. Good luck! You’ll do fine.

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