← Return to Essential Thrombocythemia: Looking for information and support
DiscussionEssential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Replies to "Hi my name is Sylvia nice to meet you all . I have the same blood..."
Welcome to Connect @sherna09. Thank you for sharing your experience with ET and how you’ve been able to accept and roll with the changes it brought to your life. It’s frightening getting a diagnosis of a blood cancer but it’s stories like yours that help to encourage others, especially someone new to ET, to stay positive; That the symptoms and condition can be managed and you can have a full, active life.
One little note of interest. You mentioned your fingers tingle when lying down and texting. I had similar and have been seeing a massage therapist who corrected the nerve impingement in my neck/shoulder area. That has all disappeared now…just thought I’d toss that information out here for you. ☺️ Might be worth a try.
How often do you have followup blood work for your ET?