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@sherna09

Hi my name is Sylvia nice to meet you all . I have the same blood cancer . I take 1 baby aspirin 81 mg and hydroxea was taking 2 capsule every other day but it made me so tired so I cut down to 1 capsule daily but on Sunday and Wednesday I take 2 capsules .My platelets were up at 1,202 around April first diagnosed 2021 then October dropped to 636 . I want to say that at first I also was scared and brought a lot of emotions but I come to understand that this is part of my every day life now . around that time i recall as if something was terribly wrong I felt my body full of pain and inflammation . I remember getting bruised easily as well . I cut down on red meats and caffeine for I feel as if it triggers my bc ( blood cancer) now that my numbers have dropped but not as to where my oncologist needs them they are around 484 now . I take walks ride bikes and sometimes I get on my treadmill . I still get tired at work around 3 pm I feel as I want to take a nap the weird thing about that is that on my days off I feel exhausted but was not able to sleep back then .. now my Dr. told me to take my medication at night that has really changed to a positive .. I’m tired but it is manageable during the day and get to sleep at night now … I also have tingling in my hands on my fingers as I’m laying down texting you .. I haven’t told my oncologist as I forget .. Keep us posted stay positive and I know things will look brighter.. big hugs prayers to all of you 🤍🙏🏼

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Replies to "Hi my name is Sylvia nice to meet you all . I have the same blood..."

Welcome to Connect @sherna09. Thank you for sharing your experience with ET and how you’ve been able to accept and roll with the changes it brought to your life. It’s frightening getting a diagnosis of a blood cancer but it’s stories like yours that help to encourage others, especially someone new to ET, to stay positive; That the symptoms and condition can be managed and you can have a full, active life.
One little note of interest. You mentioned your fingers tingle when lying down and texting. I had similar and have been seeing a massage therapist who corrected the nerve impingement in my neck/shoulder area. That has all disappeared now…just thought I’d toss that information out here for you. ☺️ Might be worth a try.
How often do you have followup blood work for your ET?