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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@bj87

I’ve been taking Hydroxyurea for at least 30 years and last year or so was switched to Anagralide with no problems or changes. I also have Afib and take a prescription for it. Don’t remember the name of it. My hematocrit ranges between 27 and 22. When it gets to 22 I get a red blood cell infusion and that’s good for at least a week but usually 2 and so 3. I can do anything I want, just not for very long before I want to sit down.

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nohrt4me | @nohrt4me | Jul 15, 2023

"I can do anything I want, just not for very long before I want to sit down."

That's familiar territory for me, too! No afib, but a mitral valve they tell me needs repaired. I told them not until they agree to do the transcath procedure instead of cracking my chest open. I think they'll cave in at my October appt.

I am scrubbing tile on the kitchen counters today. It's going about 3 feet at a time. Then a short break to let one section dry before starting the next.

I used to be a super high energy person, and I get disgusted at the pace I have to work now. It's often hard for me to accept limitations.

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