I'm with you 💯 about don't stop searching for what is the cause of secondary Polycythemia, it means there's something going on somewhere in your body that likely isn't good and needs treatment. Whatever it is, it's triggering your body to generate more red blood cells that it doesn't need, a response it thinks is correct to try and fix an issue. Keep getting tested for everything possible until they find the reason. I can only imagine how scary and frustrating it is right now with not knowing.

My first Hema/Onc doc thought mine was secondary at first, he felt my lungs may he compromised and the issue because I get pneumonia quite easily when I get sick. I would get very sick because I'd keep working and never rest, anyone would have eventually gotten very sick. Regardless, more extensive bloodwork showed definitively I have PV, not secondary. I did have a little ray of hope but decided either way, I've got this and will do everything needed to live a long, relatively healthy 😉, trying to get to and find my "new norm", and lots of fun & travel for the rest of my life. I won't lie, just had 2 very bad fatigue days which kinda makes me down but yesterday was good, got a lot done and today is another day.
I see my oncologist next week, have my list of questions and feel good about what he's going to say after getting my numbers this week and the PA letting me go 2 months before my next CBC.

Happy Sunday everyone, very dreary & rainy in NJ and the Canadian fires are making air quality bad (along with all the rain & pollen), I may spend majority of the summer at the lake in the Poconos. I'm lucky to have 3 family members that live there.

Stay strong 💪 ✨️ 💓
It takes a village!