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Has anyone had PC that is very aggressive and a very low low PSA?
Prostate Cancer | Last Active: Jul 23, 2023 | Replies (47)Comment receiving replies
Which mayo clinic did you go to if you don't mind me asking . I'm Jeff. My original Gleason score was 3+4 PSA WAS JUST OVER 5..had the robotic procedure Ion August of 2015. Everything seemed well and was declared cancer free after 5 years (202). Thing were going well till July of 2022 and the psa clicked up to point 1. Waited 3 months and it went to .18 just checked last week and it's now at 34..rocky mountain cancer centers wants me on the orv pill, one
urology oncologist wants to keep waiting. Third radiation oncologist wants to do radiation salvage but no drugs. Is it worth my time to go to the matin clinic. I just turned 60
Replies to "Which mayo clinic did you go to if you don't mind me asking . I'm Jeff...."
Biochemical recurrence (BCR) is defined as PSA rising over 0.2
Preferred PSA treatment range is 0.2 - 0.4/0.5
After RP my initial PSA was 0.19 and considered BCR
Johns Hopkins recommended radiation IMRT 37 txs 66.6 Gy to whole pelvic region (WPRT) together with 4 - 6 mo course of ADT (Orgovyx or Eligard)
Dr may want PSMA PET scan to check for metastases, which must be done before ADT
I am 73, patient not physician
Best wishes
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I went to Mayo Rochester. Treated by Dr. Kwon. My Big 10 University medical system wanted me to do radiation right away due to metastasis to a lymph node in my chest. They also said the hope of getting rid of my disease was “very low”.
My wife found several videos by Dr. Kwon on YouTube and the Prostate Cancer Research Institute. I highly recommend these.
I asked the university oncologist if he would do the treatment recommended by Mayo. He said “No, it’s not effective.” We moved my care to Mayo. We also used Minnesota Oncology for the Chemo treatments and Mayo for the radiation. I drove to MN 13 times last year and it was worth it. I am clear at 6 months post radiation. I only wish we had gone to see Dr. Kwon first. (I had Gleason 9-10.)