Darn nerves anyway, but we can't live without them.

I am so sorry to hear of your challenges. It can wear you down, but keep pushing and looking for answers. Don't overlook the little things on your journey.

I experienced a spinal cord injury in 2006. At one time, I was on 300 mg of morphine and 100mcg of fentanly a day, in an attempt to control pain. We have tried all the drugs, had an SCS, and looked under all the rocks. 2 years ago, I really began to fail. I lost 90# in 2 years, and I kept getting sicker. We got an appointment at Mayo and have undergone 15 to 18 visits and tests this past year . We finally got to 2 doctors who had seen my condition CSS, and discovered a few things this past year.

Pain was horrific in my left hip for some reason. CSS can do that like CRPS. In Feb, we found that I had a hernia and had that repaired. Still worse. A year ago, I did the Cologuard test, and it came back positive for cancer. Had a Colonostrophy and they found nothing. My Mayo doctor ordered an endoscope to get a good look around my stomach. They found that I have an advanced case of Gastroparesis. We will have surgery to correct that. While they are in there, they will remove a 25mm mass, yes cancer from my stomach. The point in all of this, is that good things can come from the bad.

Keep looking, and don't give up. I have an Iowa Medical marajuana card and the Vap pens keep me going. I am sick constantly, sleep maybe 30 minutes a day. It keeps me going. When I was on all that morphine, I knew that I was dying. That's behind me. I'm going to live until I die, not die because I quite living. Moving /walking hurts like crazy, but once I stop moving, I will be done. As I laughingly say "you can't solve movement disorders without movement."

I wish you the very best journey possible. If I can help answer any questions you have, please let me know.

God bless your journey.