← Return to Polycythemia Vera: Just been diagnosed

Discussion

Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

Comment receiving replies
@chella65

My research doesn't give a definitive answer to the secondary. I haven't tested pos for the gene, and I don't have any abnormality enlargements Im told just the elevated blood results and physical symptoms so may have to have the bone biopsy to be certain. I did some research on secondary and all I can find is there may be an underlying condition not yet obvious which doesn't say alot to me. Somethings I guess we just can't be certain about. Hang in there, we are all here for each other.

Jump to this post


Replies to "My research doesn't give a definitive answer to the secondary. I haven't tested pos for the..."

I was told before I had the Jak2 positive that if it were Polycythemia secondary that they recommend a body scan. They said they could begin with an complete abdominal ultrasound but ultimately the scan was needed. Something is causing your numbers to be what they are and you need to figure out what it is now rather than later. It’s hard not to stress but you need answers in order to fix what ever is wrong. Be persistent. You will figure it out and you will be better!