1. < Colorectal Cancer

Hi, stage 4 colorectal cancer here

Posted by wifemom3 @wifemom3, Apr 23, 2022

Hi. I am new to the group. My name is Michele and I am located in Florida. I was recently diagnosed with stage 4 colon cancer on January 19th 2022.
I am currently on my 7th round of chemo. Is anyone else newly diagnosed with stage 4? Looking for a little support.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

lindalouloulou | @lindalouloulou | Jul 10, 2023
In reply to @becmcmanus "My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be..." + (show)
@becmcmanus

My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be willing to share what cancer center your husband received treatment at? He’s thinking he needs the HAI pump and looking for a cancer center for that. Thank you!

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In Florida, we went Florida Cancer Center in Venice. In Michigan we go to Beaumont Cancer center. Good luck on your journey. But every time they stop chemo, His CEA levels skyrocket

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laser | @laser | Jul 10, 2023
In reply to @lindalouloulou "Hi. Thank you. He had all his rectum taken out. Has a colostomy bag. When they..." + (show)
@lindalouloulou

Hi. Thank you. He had all his rectum taken out. Has a colostomy bag. When they did surgery, he now has no control over his bladder. It is in liver and lungs. While he has been taking chemo, there is a sack of fluid by where he had the surgery. And it is spreading to another area. By where he had the surgery. It kills me to see him like this. Linda

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After I had my surgery, I had to wear an ileostomy bag for 3 months and then had it reversed. I also did experience some other issues from the radiation regarding my sexual organs but at least I'm alive and am able to have some good years with my loving wife yet. We have been married 52 years this August. My wife stood by me all the time during my procedures and was with me during every doctor visit. You are such a fantastic companion while your husband is going through this. Believe me he does appreciate your standing by him through all of this. I know this from experience.

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2 replies
lindalouloulou | @lindalouloulou | Jul 10, 2023
In reply to @laser "After I had my surgery, I had to wear an ileostomy bag for 3 months and..." + (show)
@laser

After I had my surgery, I had to wear an ileostomy bag for 3 months and then had it reversed. I also did experience some other issues from the radiation regarding my sexual organs but at least I'm alive and am able to have some good years with my loving wife yet. We have been married 52 years this August. My wife stood by me all the time during my procedures and was with me during every doctor visit. You are such a fantastic companion while your husband is going through this. Believe me he does appreciate your standing by him through all of this. I know this from experience.

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Thank You. Yes he does. Bless you

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k8kent | @k8kent | Jul 11, 2023
In reply to @lindalouloulou "Hi. Thank you. He had all his rectum taken out. Has a colostomy bag. When they..." + (show)
@lindalouloulou

Hi. Thank you. He had all his rectum taken out. Has a colostomy bag. When they did surgery, he now has no control over his bladder. It is in liver and lungs. While he has been taking chemo, there is a sack of fluid by where he had the surgery. And it is spreading to another area. By where he had the surgery. It kills me to see him like this. Linda

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Praying for both of you🙏🙏🙏🙏♥️♥️♥️

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lisaf64 | @lisaf64 | Jul 13, 2023
In reply to @becmcmanus "My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be..." + (show)
@becmcmanus

My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be willing to share what cancer center your husband received treatment at? He’s thinking he needs the HAI pump and looking for a cancer center for that. Thank you!

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This just happened to my husband and coming here to find answers on what is next. So many questions.

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1 reply
alonenscared | @alonenscared | Jul 14, 2023

hello, no disrespect by any means , im having a colonostomy tomarrow morning to find out whats going on. hut i am pretty sure what it is. theres a mass the size of a softball pushing against my colon. anyways i am just curious to know what symptoms anyone else had before they officially found out .
please share, i am scared and alone. thank you very much

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2 replies
briancl | @briancl | Jul 14, 2023
In reply to @alonenscared "hello, no disrespect by any means , im having a colonostomy tomarrow morning to find out..." + (show)
@alonenscared

hello, no disrespect by any means , im having a colonostomy tomarrow morning to find out whats going on. hut i am pretty sure what it is. theres a mass the size of a softball pushing against my colon. anyways i am just curious to know what symptoms anyone else had before they officially found out .
please share, i am scared and alone. thank you very much

Jump to this post

I thought I had a gastro issue and hemorrhoids, but it was rectal cancer. I actually went to a gastroenterologist to try to figure out what was going on with my gut. He though cancer was probable but said the only way to find out was a colonoscopy. After the biopsy it was confirmed.

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1 reply
alonenscared | @alonenscared | Jul 15, 2023
In reply to @briancl "I thought I had a gastro issue and hemorrhoids, but it was rectal cancer. I actually..." + (show)
@briancl

I thought I had a gastro issue and hemorrhoids, but it was rectal cancer. I actually went to a gastroenterologist to try to figure out what was going on with my gut. He though cancer was probable but said the only way to find out was a colonoscopy. After the biopsy it was confirmed.

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gosh, im so sorry to hear that. how are you doing now ?

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1 reply
briancl | @briancl | Jul 15, 2023
In reply to @alonenscared "gosh, im so sorry to hear that. how are you doing now ?" + (show)
@alonenscared

gosh, im so sorry to hear that. how are you doing now ?

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I started chemo (12 sessions plus 2 days on chemo pump after each session) and radiation (6 weeks every day) treatment shortly after diagnosis, starting in November 2022. After that treatment my surgeon performed a colonoscopy and said that he can't see any signs of cancer. I have to check again in 5 weeks but it seems that the treatment worked. It was the best news that I have ever received so here's hoping that I get the same result in 5 weeks time.

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1 reply
cjay | @cjay | Jul 15, 2023
In reply to @alonenscared "hello, no disrespect by any means , im having a colonostomy tomarrow morning to find out..." + (show)
@alonenscared

hello, no disrespect by any means , im having a colonostomy tomarrow morning to find out whats going on. hut i am pretty sure what it is. theres a mass the size of a softball pushing against my colon. anyways i am just curious to know what symptoms anyone else had before they officially found out .
please share, i am scared and alone. thank you very much

Jump to this post

@alonenscared
Are you having a colonoscopy? To see what the problem is? A colonostomy is the surgery where your waste is diverted to a bag attached to your abdomen. That usually comes after diagnosis and surgery. Good luck💗

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