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Replies to "I have had PV for over 12 years it just about killed me at the beginning,..."
Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)
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I have had PV for over 12 years it just about killed me at the beginning, but very blessed to say that I'm doing well 12 years later my blood count is perfect. I take jakafi to keep my blood count under control, and I take eliquis as a blood thinner. The only problem I have is difficult time getting air I'm not sure what's going on with that but it's been a rough go LOL
Replies to "I have had PV for over 12 years it just about killed me at the beginning,..."
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I’m so happy for you. I’m 4 years in, 74 hrs old and seem to keep steady with a phlebotomy every 4-6 months and 2 aspirin a day. I notice a change in my breathing but seems to come and go. Yesterday I golfed 18 holes and walked. Had to rest sometimes but not bad. My real problem is the itching. Keep a positive attitude as we all have different challenges. I can’t let the “ Old woman In”