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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (400)

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@ausableriver

So my DX has been identified as secondary Polycythemia. I was so damn excited it was not polycythemia vera - but also a bit perplexed about what secondary polycythemia means, prognosis, etc. Hemo took more blood for another test. My HBG and HCT are high with HCT around 50. No real discussion about treatment - just "continue blood checks". Anyone here dealing with the same and provide some insight? It's been a rollercoaster of the "C" word to "nothing". the emotional ups and downs have moved into a major depressive episode. Of, which was in denial - not my first go around with that - and I'm doing my tried and true treatment to get out of that place. But, the questions around the polycythemia loom -

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Replies to "So my DX has been identified as secondary Polycythemia. I was so damn excited it was..."

My research doesn't give a definitive answer to the secondary. I haven't tested pos for the gene, and I don't have any abnormality enlargements Im told just the elevated blood results and physical symptoms so may have to have the bone biopsy to be certain. I did some research on secondary and all I can find is there may be an underlying condition not yet obvious which doesn't say alot to me. Somethings I guess we just can't be certain about. Hang in there, we are all here for each other.