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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@dodgegirl2

Hi, My name is Teresa. I believe being 77 years young things happen for a reason. In 2021 I was at the Mayo clinic in Rochester for other unrelated
problems. After getting home I printed out my records and saw the results of
an SPE test. They discovered a fraction M protein. What is this?????? Come to
find out MGUS. Since then I have had several SPE and IFE and Kappa/ Lambda test through blood work. In a way I am lucky. I have non-hodgkins
lymphoma called CTCL. Because of this my oncologist/hematologist does
Ct’s every 6 months and labs every month. January of this year they found a M
protein IgG Lambda same as the Mayo found. On June 6 this yr. my oncologist
did labs and Kappa/Lambda testing. They found M protein in the blood but also M spike on the electrophoresis. At this point because it is a small amount
my doctor will keep an eye on my labs. This is one reason you need a hematologist. I have searched up and down for basic information that tells what MGUS is so I can explain it to the family. I told my husband today, that
this is a watch and see. What I need to get more info on is M protein and the
kidneys. Today I had a kidney stent exchange. It is amazing to me more doctors don’t know about this. To answer your question. You aren’t alone.

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Replies to "Hi, My name is Teresa. I believe being 77 years young things happen for a reason...."

@dodgegirl2 Welcome to Mayo Clinic Connect. You are in the right place, asking questions!

Here is an article from the International Myeloma Foundation website, about MGUS. As you will see from our fellow members, most everyone goes a long time without ever advancing in their disease status to the next level, usually several years, if at all. The watch-and-wait can be frustrating, but it is crucial to keep track of things, as you already have found out.

https://www.myeloma.org/what-are-mgus-smm-mm

Do you have any questions for me?
Ginger