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Any survivors of Non-Hodgkin's lymphoma out there?
Blood Cancers & Disorders | Last Active: May 14 9:39am | Replies (21)Comment receiving replies
Yes, we will have an appointment on July 26th and another blood draw before that.
I follow the blood disorder communication: a diagnosis is seemingly hard to get. Just take smoldering Multiple Myeloma or MGUS.
Our provider (website) says they treat 125 MDS patients every year and point to chemotherapy as a reason for increasing case numbers found nowadays because patients survive longer at old age.
Overall , they are not very good talking about side effects .
It was our local GI who helped us through our difficult post Chemotherapy time.
That’s why I was looking for patients/caregivers with MDS experience (no cure, blood transfusions, severe weakness, short survival period)
Replies to "Yes, we will have an appointment on July 26th and another blood draw before that. I..."
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Hi @kippi1950, I found several discussion in Connect with members who have MDS or loved ones with the condition.
I’m posting a few below for you. There are conversations as well. You can find those by typing in MDS in the top search bar. There will be a list of related discussion for you.
The first site is an article about MDS posted Hematology that you might find helpful.
~Myelodysplastic Syndromes Treatment: Past, present and goals for the future
https://connect.mayoclinic.org/blog/hematology/newsfeed-post/myelodysplastic-syndromes-treatment-past-present-and-goals-for-the-future/
~Myelodysplastic syndromes (MDS): When do you need to start treatment? (With members @corvairfan @tyson1221 and others)
https://connect.mayoclinic.org/discussion/mds-2/
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Myelodysplastic Syndrome (MDS) with members @kjjjrader @jimbond48 @ davidkreuser and others
https://connect.mayoclinic.org/discussion/myelodysplastic-syndrome-mds-1/
It’s understandable to be concerned about the possibility of developing another health condition such as MDS or AML years after treatments with chemotherapy. We’ll be optimistic that this isn’t what your wife is dealing with. Please let me know what you find out with her next appointment. Wishing her (and you) only good news.