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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)
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@gingerw

Acanadabob I typed out a reply and then it got lost in the etherworld! Go figure.

I would definitely ask for a referral to a hematologist/oncologist. There is most often a slow-to-no progression beyond MGUS into a more serious condition, but it bears monitoring. And is best monitored by a specialist.

Did your neurologist ever mention why they are opposed to you seeing a specialist? Hopefully you have access to the tests that determined the MGUS three years ago, so they can be used for comparison to any current labwork that might be done now.
Ginger

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Replies to "Acanadabob I typed out a reply and then it got lost in the etherworld! Go figure...."
canadabob | @canadabob | Jul 13, 2023

Hi Ginger,

The neurologist has been sending me for tests every six months to monitor. Protein Monoclonal Band and free light chains...so I have about 8 tests, the last one being a month ago.

I asked him specifically a few weeks ago about seeing a hematologist and his reply was that they would simply do a marrow biopsy and that he thought it would be a waste of the specialist's time and of my time. Not sure why he's taken this attitude, but I'm going to ask my GP next week for a referral.

Bob

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