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Any survivors of Non-Hodgkin's lymphoma out there?

Blood Cancers & Disorders | Last Active: May 14 9:39am | Replies (21)
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@loribmt

Hi @kippi1950, while a number of us have been through blood cancers and treatments we really can’t diagnosis conditions and speculating often just leads to unnecessary stress and worry. So the best answer will come from your wife’s hematologist oncologist. I know it’s frightening when you see changes in blood work after having gone through so much already.
Did you see her results online first and waiting for a followup from her doctor?

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Replies to "Hi @kippi1950, while a number of us have been through blood cancers and treatments we really..."
kippi1950 | @kippi1950 | Jul 13, 2023

Yes, we will have an appointment on July 26th and another blood draw before that.
I follow the blood disorder communication: a diagnosis is seemingly hard to get. Just take smoldering Multiple Myeloma or MGUS.
Our provider (website) says they treat 125 MDS patients every year and point to chemotherapy as a reason for increasing case numbers found nowadays because patients survive longer at old age.

Overall , they are not very good talking about side effects .
It was our local GI who helped us through our difficult post Chemotherapy time.
That’s why I was looking for patients/caregivers with MDS experience (no cure, blood transfusions, severe weakness, short survival period)

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