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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@loribmt

Hi @canadabob since you’re already in the MGUS support group you’ve most likely seen some of the information I’m posting below but it never hurts to get a refresher:

MGUS~Monoclonal gammopathy of undetermined significance (MGUS) is a condition in which an abnormal protein — known as monoclonal protein or M protein — is in your blood.

For most people it doesn’t pose a problem but it can progress into more serious diseases.
We have quite a few members in our forum who have also been diagnosed with MGUS. I’m posting several links to discussions on MGUS below, along with Mayo Clinic’s webpage on MGUS.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
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– MGUS: Please, let me know I not alone https://connect.mayoclinic.org/discussion/mgus-2d464e/

– MGUS diet: Any tips on food to enjoy or prevent progression? https://connect.mayoclinic.org/discussion/mgus-bgus-diet/

MGUS is a generally slowly developing blood condition but it’s still important to have regular bloodwork done to keep tabs on any progression.
A hematologist would be the better option than your neurologist as they specialize in blood disorders.
My suggestion is to followup with your PCP to see if it’s time to get that referral.
Have you experienced any changes such as
Bone pain,
Fatigue or weakness
Unintentional weight loss
Fever or night sweats
Headache, dizziness, nerve pain, or changes in vision or hearing
Bleeding
Anemia or other blood abnormalities
Swollen lymph nodes, liver or spleen?

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Replies to "Hi @canadabob since you’re already in the MGUS support group you’ve most likely seen some of..."

Thanks for the reply.

I think MGUS is too complex a condition for a non specialist to be in charge of. Good on him for calling for the tests, but I'd feel better if a hematologist looked at the results.

I will definitely be voicing that to my GP next week.

Bob