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How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
3 years CALR, platelets have been over a million a couple times, began 500 hydroxy daily, progressed to 1,000, now starting 1,500 daily with platelets pushing 900. Started mild edema in feet 3 months ago, (I bike vigorously 5+ hours weekly, no circulation issues) I haven't mentioned it to my Hema since I wasn't aware of the side effect. My GP ordered a thoracic MRI: normal for mid 70's. I see edema is a rare side effect of hydroxy, anyone else? I get the typical fatigue and brain fog. I get draws monthly, my Hema mentioned possibly switching to another drug, possibly hydroxy has the least side effects?
Replies to "3 years CALR, platelets have been over a million a couple times, began 500 hydroxy daily,..."
ET, JAK2617F diagnosed 7 months ago. I have been on 325mg aspirin daily when it was first suspected ET last October and after verified testing was done I was put on 500mg hydroxy. It was increased to 1000mg daily, then temporarily to 1500mg daily. My legs from the knee down have been swollen and I have lower back pain since increasing it but my doctor doesn't think it's the hydroxy. I just had a lumbar MRI. I tend to suspect the hydroxy because I never had edema before this. I am 74 years old.
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I’ve noticed edema in my left leg only since I switched to Hydrea. The other rate side effect is a venous stasis ulcer, which I’m dealing with currently.
Has anyone else experienced a venous stasis ulcer as a side effect of Hydrea? I’m curious to know.