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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)
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@phyl59

Eileen,
Is your hematologist from the Mayo Clinic?

I live in a small rural town and work for the local hospital. My oncologist said that the new standard low platelet count for ET is 600k. Anagrelide is a more potent drug than Hydrea. I know because I’ve been on both.

Injoy,
Phyllis

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Replies to "Eileen, Is your hematologist from the Mayo Clinic? I live in a small rural town and..."
eileen11108 | @eileen11108 | Jul 14, 2023

Hi Phyllis,
We live in the suburbs of Philadelphia and do not have a Mayo Clinic in our area. I see a regular hematologist who says my goal is 450 or less. As much as I hate Hydroxyurea I am very hesitant about Anagrelide as I have AFib. It seems some get palpitations taking it.

What was your experience with Anagrelide?

Thank you, Eileen

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