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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (399)
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@inevanmac

Great advice from @Lori. OV doesn’t have to define you. Someone else’s advice was that with meds it is very manageable and altho it sounds more defeatist but is not meant as such, you are likely to die with it not from it. Energy levels may some days be impacted, but you can adjust your activities. Sounds like you’re doing well changing your lifestyle - keep on going!

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Replies to "Great advice from @Lori. OV doesn’t have to define you. Someone else’s advice was that with..."
sap21981 | @sap21981 | Jul 13, 2023

Thank you…just taking it day to day. I’ve had three phlebotomies so far. My levels were 18.5 and 58 before 3rd draw. They started at 21.3 and 68. My ferritin levels were only at 8 before I started. The fatigue and joints aching, have been my biggest side effects. My vision definitely has been affected, but that could just be age. Honestly, since last summer I was thinking all these symptoms were from starting menopause because my periods started to be a bit irregular. Lots of similar symptoms.

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inevanmac | @inevanmac | Jul 13, 2023

Sorry typing slip OV = PV ..

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