Notalgia Paresthetica help

Posted by lgerkin @lgerkin, Mar 19, 2020

Hi - has anyone been diagnosed with Notalgia Paresthetica? I've had the itch that comes with this condition for years, but it has worsened over the last year and is now very painful. The center of the pain is under my left shoulder blade. I'm also experiencing numbness in my left arm. I've had x-rays and MRIs but no doctor has been able to address it - or even acknowledge that it's an issue. I've been in physical therapy for months and tried acupuncture but neither have helped, although my posture has improved greatly. Any feedback is appreciated!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hi lgerkin,
I will definitely look into Flexeril. I am not a fan of sedation effects either. I had taken Gabepentin in the past and I had a bad reaction but can't remember what it was. I will try it for a week but I don't see myself staying on it. I am realizing some things that make it worse. I also take Benedryl at night to help me sleep with the itching. I noticed that if it is cooler in my home or outside the intense itching isn't as bad. Thank you for your advice! As far as the sit pain, I am trying things to help with that also. If you have any suggestions with the sit bone pain please let me know. Thank you

REPLY

Hi lgerkin, sorry I didn't see your comments on the condition earlier. I have to go for some type of therapy. I became disabled with many injuries and I feel I am out of shape. I will start to exercise a bit and get some of my muscle tone back. Hopefully that will help me.

REPLY

Hi, kind of in desperate mode. I've had this condition for 5 years that I'm aware of. It has become quite widespread, and my back is hideous to look at with black spots. I also have Raynaud's disease and MCTD, autoimmune. Does not seem to be related to autoimmune?
I've had the dermatology route, x-rays, CBD topical, biopsy, acupuncture, calcium supplement, medical marijuana, red light therapy. TENS unit. The acupuncture has helped with pain and calcium with muscle spasms in the shoulder blades. So thankful for the that but it is very expensive out of pocket. The itching has been unbearable, though. I was advised by a neuro. clinic to try gabapentin topical. I'm willing to try but no appointments for 5 months. It sounds like most of the ideas here are very similar. It also seems like there is no one answer on treatment and what type of provider to see. Appreciative at least to be aware of others dealing with this problem. Thank you for listening.

REPLY

I want to know if there is treatment for Notalgia parenthetical yet I have being suffering from this for many years more especially the itching is getting worse by the day need some help to relieve the itching and pain

REPLY

Hello @netsy and @agutech, Welcome to Connect. I'm hoping @repairgirl, @lgerkin, @kyc117 and others can share what has helped them. While we wait for other members to respond, I thought I would share some information that may be helpful.

--- What to know about notalgia paresthetica: https://www.medicalnewstoday.com/articles/notalgia-paresthetica
--- Feb 2023 - New Formulation of FDA-Approved Drug Shows Encouraging Results for Treating a Common Itch Condition: https://www.mountsinai.org/about/newsroom/2023/new-formulation-of-fda-approved-drug-shows-encouraging-results-for-treating-a-common-itch-condition.

REPLY

I had a year of itching on my back. I tried every anti itch med and two dermatologists,with no result. Can you believe it just suddenly stopped. I don't know why. It do now have eczema under one arm lasting two years. It is not going away.

REPLY

I have severe painful itching on my upper right back. No lesions.
My dermatologist diagnosed this. Would appreciate hearing from others and what helped. She is ordering a cream from a compound pharmacy to use.

REPLY
@purpleturtle

I have severe painful itching on my upper right back. No lesions.
My dermatologist diagnosed this. Would appreciate hearing from others and what helped. She is ordering a cream from a compound pharmacy to use.

Jump to this post

Hi @purpleturtle, I moved your message to this existing discussion:
- Notalgia Paresthetica help: https://connect.mayoclinic.org/discussion/notalgia-paresthetica-help/

I did this so you can read previous helpful posts and connect with members like you.

REPLY

Gabapentin does not help my Notalgia paresthetica. The heat in my body is horrible. Is there any help for this? Ive had many tests and all results are normal

REPLY
Please sign in or register to post a reply.