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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (400)

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@bch

I’m mid-forties with ET trending toward PV. My kids are seven and its been really stressful to think about how this will impact our future. I’m also a single mom, and have used gummies to keep the stress down on the past so I’m wondering how things will works once I’m on meds. These meds seem to have quite a few side effects.

Curious, but did everyone do a bone marrow biopsy before official PV diagnosis?

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Replies to "I’m mid-forties with ET trending toward PV. My kids are seven and its been really stressful..."

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow biopsy needed.. This was a little over 2 years ago.. I had 4 phlebotomies and was immediately put on hydroxyurea which I still take every day.. I am one of the “lucky” ones in that I have tolerated the HU with little to no side effects…