Well, I learned that Rx companies have to report any and all side effects--so these side effects are likely from higher dosages than my beginning dose, which the doctor did reduce to 500 mg every other day to start with. We will see what happens after one month of this...end of July will be one month. It appears there are nothing more effective than these meds (gotta do what ya gotta do).

Hi @bch, most everything we take can have side effects. Look at an aspirin bottle, hair coloring, the glue we use in crafts, etc.
Reminds me of a joke from the late, great George Carlin.
‘The surgeon general warned today that saliva causes stomach cancer. But apparently only when swallowed in small amounts over a long period of time. ”

Yes, there are some powerful meds on the market with listings of potential side effects. Drug companies are required to list them but it doesn’t mean people who take these meds will even experience one or all of them. All my life I did my best to avoid any meds. So you can imagine my eyebrow raising when I actually had my own team pharmacist for my AML/transplant journey! Say what??? I was on a huge list of meds, many with black box warnings…gulp. But here I am, 4 years later…better living through chemistry! The drugs worked, I’m healthy and in a durable remission and off everything! While we’d all love to rely on a kinder, friendlier treatment with herbal teas, sometimes our health conditions require extra help such as blood cancers.
Have you begun any medications for your ET?