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Anyone else have Symptomatic MGUS?

Blood Cancers & Disorders | Last Active: Nov 28, 2023 | Replies (73)

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@sjgray

I, too, am 72 and was diagnosed 3 months ago with MGUS with iron
defiency. Had iron infusion 2 months ago. No symptoms, except for anemia. My mom died this past March from multiple myeloma. I am terrified that I will eventually follow in her footsteps. I was her caregiver, so I know what to expect. Prayers for everyone with this dreaded disease.

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Replies to "I, too, am 72 and was diagnosed 3 months ago with MGUS with iron defiency. Had..."

Dear SJgray, praying for you tonight. Praying the fear will go away. Some things we can change. Some things we can't. The thing you can change is the fear element. Take care of yourself and continue to do good as you did for your mother. The rest will fall into place.

@sjgray Welcome to Mayo Clinic Connect! It's perfectly normal to be fearful of a condition that took someone close to you, that you might deal with the same fate. As @nancy1900 said, changing the fear element is important. Educate yourself as far as you own unique situation. Do the recommended watch-and-wait approach as your medical team advises. Live your life fully! Try not to dwell on the "what if" of it all, although your mind, like most of us will admit to, wants to charge down that path.

How are you doing today? When is your next appointment with your hematologist/oncologist?
Ginger