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Cold feet due to neuropathy - need help

Neuropathy | Last Active: Apr 28 3:43pm | Replies (200)

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@26sabrina

I just mentioned to my psychiatrist that it felt like frostbite. When my feet feel really cold I have noticed that they are also blue to purple. I vigorously massage and do something to warm them like thick socks. My neurologist or cardiologist can't explain this. It is a passing symptom.

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Replies to "I just mentioned to my psychiatrist that it felt like frostbite. When my feet feel really..."

When my neuropathy first started that is exactly how mine started. They found a blockage in my right leg and had to have a stent put in. Im not kidding when I say that after going home my foot pain went off the charts but over time my foot pain has subsided. No more the frostbite feeling but from time-to-time sharp stinging and of course the numbness never goes away.
Hope this helps but I know isn't great news.

Hi Sabrina,
I so commiserate with what you experience and deal with.
I'm not surprised to read that your neurologist and cardiologist aren't up to speed on what is causing your symptoms. Unfortunately, not all doctors are knowledgeable. Doesn't mean it's acceptable. Where possible (since not all doctors are receptive to learning from their patients), I've explained and thus "educated" doctors throughout my years of dealing with conditions. Those that bristle and are dismissive are then no longer within my medical team, and I locate others.

I posted a lengthy piece in which I detailed how I've learned to cope with the agony of cold feet/toes (and yes my hands/toes are also affected). Indeed I have felt as if extreme frostbite has taken over those body parts, and my entire body can then feel as if drenched in frigid water. Even my scalp and ears!

So, yes, I do understand what you experience, inclusive of the badly discolored body parts. Can happen even in warmer weather. Yesterday, despite the torrid temps, my feet were cold. Our AC is set at between 72 to 74, so our home is not cold. And yet my finger tips were gray (nails a bit darker) and right foot especially was an ugly black-blue (including nails, with toe nail being darkest). On Sat., outdoor temps were again torrid, but we made a quick trip to local market for much needed items. Anticipating that store would be cold, I had a sweater in my large bag (ana a pair of stretchy gloves, but found I didn't need them). Yes, I got "looks" b/c I had a sweater when the outdoor temp was hovering 95, but did I care? No. We were in the store a total of 10 minutes (we went straight to the produce area), which included the fast check out counter, and I was grateful to be back out in the heat. My toes hurt a bit but I expected that. And yes, I ALWAYS wear socks within my variety of comfortable non-binding footwear. I donated all of the attractive shoes and boots that I wore before retiring from teaching. I've embraced wide width, comfortable foot-bed foot wear, generally Acis, Skechers, Merrell (love these!). One thing that I do NOT do is to massage vigorously: The areas are too painful to do that, so I warm them up first (see suggestions in my other post) and then massage GENTLY, also "exercise" them by wiggling/splaying apart.

Don't be discouraged. Learn to accept that there is nothing that will "erase" the discoloration on your feet (and for me, on my hands/fingers/nails!). Figure out what you can do to adjust your activities and what you wear in order to help yourself. Expect that there will be naysayers and skeptics who will express words that can go beyond being annoying. I learned to just smile and say "Thank you but I really know what's best for me." And change the subject.

I wish you better days and nights ahead.😊🌺