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Myelofibrosis*

Blood Cancers & Disorders | Last Active: Jul 7 12:31pm | Replies (114)

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@snakebite

I used to use Procrit to stimulate blood production. After a time it stopped giving me the needed results so we moved to Aranesp. I also get Reblozyl injections. About a year ago they added Dacogen infusions. For the past coupe of years I have needed Blood transfusions pretty often so as to keep my HGB above 8. The Dacogen treatments have reached the point that the side effects outway the benefits, so I just stopped the Dacogen. The good news is that the Dacogen did help my marrow to start producing at least some more good blood cells, and has cut down on the frequency of required Blood Transfussions. The new drug, Momelotinib, is supposed to give the same Cancer fighting effect without all the negative side effects of killing good cells too. I don't think it is a "Cure", but it could be the closest thing yet if it performs like hoped, and like some of the Trial results showed. Being free from the need to get Blood transfussion is a big deal at this point in my journey with MF. The new drug should be approved by Sept 16 this year. Let's all keep our fingers crossed. In the mean time... stay on the Sunny Side.

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Replies to "I used to use Procrit to stimulate blood production. After a time it stopped giving me..."

Thanks for mentioning Procrit. That's where I am at, and my HGB is not moving. We are talking about changing, but to what. I am not entertaining the stem cell solution. The information about the new drug is appreciated.
Since you have been through this for so long, what are your side effects. Do you have to be treated for anything else? Before the bone marrow problem I had Sjogren's so stopped methotrexate when I realized that it was the bone marrow culprit. Believing for miracles, however.