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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (399)Comment receiving replies
Are gummies ok to take?? I was a regular marijuana smoker for approximately 20 years, but was afraid that that might have been a cause to my diagnosis and have not smoked since. I don’t miss it, but do get anxious with this new diagnosis. I’m only 48 with kids that are 15 and 11. I worry constantly that this is going to cut my life short which is terrifying.
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Great advice from @Lori. OV doesn’t have to define you. Someone else’s advice was that with meds it is very manageable and altho it sounds more defeatist but is not meant as such, you are likely to die with it not from it. Energy levels may some days be impacted, but you can adjust your activities. Sounds like you’re doing well changing your lifestyle - keep on going!
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Hi @sap21981. Before you try gummies, make sure you discuss this with your hematologist. It may be perfectly fine to take them but some supplements, including marijuana, gummies, etc., can interfere with some medications. It’s better to be safe and ask a medical professional first. 🙂
I can really appreciate your fear with having this blood condition and the worry about your future for your children. As a mom (or dad) it’s terrifying thinking you won’t be here for your kids! No matter how old they get they still need their parents.
My advice, after surviving a very aggressive form of leukemia, is to try and rework your perspective to accept that you now have a condition that impacts your life but it doesn’t have to define it! This isn’t going to take you out anytime soon and you’ve just started treatment. There are options ahead of you for treatment for a good long time. We all live with the possibility of some freak accident, like being hit by a bus! But if we lived with that level of fear daily, we’d never leave the house. ☺️