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DiscussionHas anyone stopped taking camzyos? I have stopped and feel very sick.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 29, 2023 | Replies (40)Comment receiving replies
Replies to "Thank you. Did you leave the house at the beginning? Can I leave the house? Currently..."
I didn't have a choice. My dad died three days after I got home from Rochester. I didn't get a chance to do otherwise. I know right now you are suffering with the terrible side effects of what Camzyos did to your heart and body...and that may take time to go away. Hopefully in the two weeks before you have surgery it will give your body more time to rid itself of the drug and the awful side effects. I pray that this time will offer you more healing before the actual surgery. To be able to walk around more, get some fresh air, breathe in deeply and focus on positive thoughts and positive results...My only restriction was I was not allowed to drive for one month. They don't want you to disrupt the sternum from healing. But I was able to get out, mostly because I had to, but also to be able to walk on our River Trail. There was a lifting restriction too, nothing over 10 pounds. My purse was about as much as I picked up. Do you have an appointment with the surgeon?